The purpose of the visit was to have his chest brace fitted properly. But whilst there he had other things looked into too. He had adjustments made to his chair that help him drive better and he had good sessions with his SALT lady.
One of his biggest achievements whilst there was being off the ventilator for over 100 hours straight and coping really well with it. This was done with a view to see whether there is any chance of weaning off the ventilator overnight as well as at daytime. The good news is that he is on a reduced nighttime ventilation schedule. The staff in London want Andy to take spirometer readings daily to check his vital capacity and so long as it's over 1.5L each time he can have reduced ventilation. So far so good, and after Andy's done a month of readings or so we will send them to London and they will decide whether to reduce his ventilation hours further.
In practice this means he is vented from 2-7am. The staff put the vent on at 2am, which doesn't usually interrupt either of us sleep wise, which has meant that we can chat to each other when we want to and settle down when we want to rather than because Andy actually can't speak.
I took the children up to London for the first weekend and we stayed with my friend in Hemel Hempstead again. We had the arrival of our 'Henry' van by then so we were able to go out with Andy in London and then we took our friends out to lunch at a pub in Hemel Hempstead. I collected Andy from London on the following Friday and then we started the whole process of living together again.