Andy's Story

Andy Blagden is a young man, married to Charlotte and has 3 children; Lauren, Katie and Nathan. (The children were 12, 9 & 2.5 years old at the time of diagnosis).
Andy was diagnosed with a tumour in his spinal cord in June 2013. The tumour was at spinal level Cervical 3 going down to Thoracic 2 (C3-T2). This is incredibly high up the neck and the only option was to operate. This in itself was not without risk but after a 15-16 hour operation the tumour had been removed. The outlook was good. Then Andy became ill....
Early September Andy contracted pneumonia and then sepsis, Andy's kidneys then failed and he was put on constant dialysis for a month and required a blood transfusion during this time.
Andy came through all this but he now lives with the consequences; paralysed from the shoulders down and unable to breathe without ventilatory support, this is his ongoing story of rehabilitation with the goal of getting back home to his family and his future.

Sunday, 22 January 2017

Some very exciting news indeed!!

In July Andy went to Stanmore for a inpatient stay to work on one of his goals: coming off the ventilator. 
At that time he was going on the ventilator at about midnight until 7:30am but when he was at Stanmore he was taken off the vent for 4 consecutive nights, on the 5th day he showed signs of fatigue that necessitated going back on the ventilator again. On the back of that though his respiratory team decided he could cope with 5 hours ventilation a night so long as he blew certain numbers on his spirometer machine, they then wanted his care team to record those numbers day and night and then send them up to London after a couple months.
So for the past couple months - we had a broken machine for a couple months too and had to wait for it to be repaired and the cogs of the NHS and CCG don't work particularly fast - Andy has been doing his spirometry twice daily, with consistent improvements in his readings, and just before Christmas we sent the results up to his physio in London who then looked at them and discussed them with the others and emailed us today to say that:

(With stipulations attached obviously)

It may not sound much in the scheme of a week but, trust me, it's HUGE. It's proof that Andy's breathing is strengthening and that there is still room for improvement and progressionšŸ˜ƒ