At that time he was going on the ventilator at about midnight until 7:30am but when he was at Stanmore he was taken off the vent for 4 consecutive nights, on the 5th day he showed signs of fatigue that necessitated going back on the ventilator again. On the back of that though his respiratory team decided he could cope with 5 hours ventilation a night so long as he blew certain numbers on his spirometer machine, they then wanted his care team to record those numbers day and night and then send them up to London after a couple months.
So for the past couple months - we had a broken machine for a couple months too and had to wait for it to be repaired and the cogs of the NHS and CCG don't work particularly fast - Andy has been doing his spirometry twice daily, with consistent improvements in his readings, and just before Christmas we sent the results up to his physio in London who then looked at them and discussed them with the others and emailed us today to say that:
ANDY CAN HAVE ONE NIGHT A WEEK OF THE VENTILATOR!
(With stipulations attached obviously)
It may not sound much in the scheme of a week but, trust me, it's HUGE. It's proof that Andy's breathing is strengthening and that there is still room for improvement and progression😃